Tauranga mum questions funding cut for daughter with Rett syndrome

AI Summary

A mother in Tauranga, New Zealand, is raising concerns after funding cuts left her daughter with Rett syndrome receiving less than $10,000 annually for round-the-clock care. The family highlights challenges in supporting rare disease patients under current funding structures.

Remi needs round-the-clock care, but her family receives less than $10,000 a year.